Research Registry Updates

2011 Spring
2010 Summer
2009 Fall
2008 Spring
2007 Spring
2006 Fall
2005 Fall
2005 Spring
2004 Spring
2003 Fall
2003 Spring
2002 Fall
2002 Spring
2001 Fall
2001 Spring
2000 Third Quarter
2000 Second Quarter
1999 Fourth Quarter


English Brochures

What is Alpha-1 Antitrypsin Deficiency?

A Guide for the Recently Diagnosed Individual

What Does It Mean to Be an Alpha-1 Carrier?

A Health Care Provider's Guide to Alpha-1 Antitrypsin Deficiency

It's All in the Family

The Liver and Alpha-1

Taking Part in Alpha-1 Research

Alpha-1 Research Registry Overview

Research Registry Questionnaire

Alpha-1 Coded Testing (ACT) Study 

Issues in End-of-Life Care
 

Spanish Brochures

¿Qué es la Deficiencia Alfa-1 Antitripsina?

¿Qué significa ser portador de Alfa-1?

El hígado y Alfa-1

Aspectos sobre la atención al final de la vida